Navigating TBI Recovery: Patience, Persistence, and Practical Steps for Healing

Mar 136 min read

This blog post explores the holistic approach to TBI recovery, emphasizing the importance of patience, self-advocacy, and assembling the right team of specialists. It discusses therapies, supplements, and mental health support that can help rebuild brain function and support healing. The post also addresses the emotional challenges of living with an invisible injury and offers practical steps for managing recovery.

Disclaimer: The information provided in this blog is based on my personal experience and research regarding brain injury and recovery. It is not intended as medical advice. Always consult with a qualified healthcare professional before making any decisions regarding your health or treatment.

When I first experienced the life-altering effects of a traumatic brain injury (TBI), I had no idea how long the journey to recovery would be. It’s a path full of ups and downs—frustrating plateaus, small victories, and unexpected challenges. But what I’ve learned along the way is that healing from a TBI is not just about time; it’s about resilience, support, and most importantly, patience. If you're on this journey, or you know someone who is, I want to share a few insights I’ve gathered over the past months that might help ease the way forward.

running 1st place female reward — A photo of me smiling and holding my 1st place female medal after running a 10k before my brain injury. This moment represents the athletic drive and strength I once had, contrasting with the slower, more patient pace of TBI recovery. The image ties into the blog post’s theme of "Healing is a Marathon, Not a Sprint," emphasizing that while I once thrived in fast-paced achievements, my current recovery journey is about resilience, small wins, and steady progress. Just as I trained and worked hard for that 10k, I now focus on the long, sometimes challenging, journey of healing my brain—one step at a time.

1. Healing is a Marathon, Not a Sprint

TBI recovery can feel like an unending process. The symptoms are often invisible, and the pace of healing can be painfully slow. The frustration of feeling “stuck” can wear on you. But the key to healing is understanding that your recovery is a marathon, not a sprint. Each day may feel similar, but even the smallest improvements matter.

For example, early on in my recovery, I focused on the things I couldn't do—what my injury had taken away. I couldn’t work, I couldn’t do the things I loved, I couldn’t exercise the way I used to. But eventually, I realized that focusing on what I can do was the shift I needed. I began celebrating the little wins: walking around the block without a headache, reading a page of a book, or even just sitting through a conversation without my brain fog intensifying. Progress isn’t linear, but there is progress.

2. The Importance of Self-Advocacy

One of the most critical lessons I’ve learned is how essential it is to advocate for yourself, especially when it comes to the medical and therapeutic support you need. When I was first injured, I felt like I wasn’t being taken seriously. Doctors dismissed my symptoms as “just a headache” and told me to wait for things to “get better on their own.” It wasn’t until I started doing my own research and advocating for the right treatments that I found the support I truly needed.

Don't let anyone minimize your experience. If something doesn’t feel right, or if your current treatment plan isn’t working, keep searching for answers. This is your recovery, and you are the expert on your own body. As a reminder, building a team of specialists who understand brain injuries—whether it’s neuro-optometry, neuro-PT, or speech therapy—can make a world of difference.

A serene photo of me standing in a river, barefoot, gently kissing my dog, Beau, as we share a peaceful moment in nature. This image was taken after my Craniosacral Therapy (CST) session, where I was encouraged to connect with the calming energy of the natural world. The therapy recommended dipping my feet into the water to cleanse and release, helping me to let go of tension and emotional weight from my TBI recovery journey. It perfectly embodies the holistic approach to healing—balancing physical, emotional, and mental well-being. The calmness of the river and the warmth of my bond with Beau symbolize the restorative power of slowing down, reconnecting with nature, and embracing moments of peace during the healing process.

3. A Holistic Approach to Healing

Healing from a TBI isn't just about managing symptoms—it’s about rebuilding your brain and supporting your entire system. Over the course of my recovery, I’ve found that a holistic approach is essential. Here are some of the key elements I’ve integrated into my healing plan:

Physical Therapy (PT): Both neuro-PT and orthopedic PT have been critical in helping me regain strength, improve balance, and alleviate neck instability. Neck injuries often accompany TBIs, and physical therapy has been a godsend in addressing that.
Neuro-Optometry: Vision issues often accompany TBIs, and seeing a neuro-optometrist has been vital in addressing my brain’s reaction to light and visual stimuli. Light therapy and vision exercises have helped reduce brain fog and improve focus.
Craniosacral Therapy (CST): While not everyone’s experience with CST is the same, I’ve found it incredibly helpful in managing stress and facilitating brain recovery. It’s a subtle but powerful treatment that works with the body’s natural healing processes. It’s worth considering, but make sure you find a trained and trusted practitioner who understands TBI.
Supplements: Nutrition plays a huge role in brain recovery. Supplements like Lion's Mane, Omega-3s, and Ashwagandha have been crucial in supporting my cognitive function and reducing inflammation. I can’t stress enough how important these supplements are for the long-term healing of the brain.
Mental Health Counseling: The emotional toll of a TBI is often underestimated. Dealing with frustration, anger, anxiety, and depression is common, especially when the injury feels invisible to others. Having a counselor who understands TBIs and the mental health impact is invaluable. It’s okay to feel upset or overwhelmed—it’s part of the healing journey.

4. Living with an Invisible Injury

One of the most difficult aspects of TBI recovery is that the symptoms aren’t always visible to others. While someone with a broken arm may have a cast that everyone can see, brain injuries are “invisible.” This can lead to frustration when others don’t understand your limitations or when they don’t offer the support you need.

When you’re in the recovery phase, it’s crucial to communicate openly about what you’re going through. Share your experience with friends, family, and coworkers so they can better understand your needs. For example, I learned to tell my loved ones when I was struggling with certain tasks—whether it was focusing, processing information, or dealing with sensory overload. It’s important for the people around you to be aware of how your brain injury impacts your daily life.

5. Focus on What You Can Control

Though you can’t always control the timeline of your recovery, you can control how you approach it. Taking an active role in your healing is empowering. Whether that means advocating for yourself with medical professionals, following through with your therapies, or simply taking time to rest and recharge, embracing the journey and being kind to yourself is key.

Yes, there will be days where you feel defeated, frustrated, or even hopeless. But I encourage you to stay focused on the things you can control—your mindset, your self-care, your support system, and your commitment to healing. Celebrate the small wins, and be patient with yourself.

6. Hope and Healing

Above all, I want you to remember that healing is possible. Even though my own journey has been long and full of challenges, I’ve seen improvement and growth. The brain has an incredible ability to heal, and every small step forward is progress.

It may not happen as quickly as we’d like, but it will happen. Take it one day at a time. Keep showing up for yourself. Your healing is worth it, and you are stronger than you think.

Sending healing vibes and encouragement for your journey.

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